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PostPosted: Fri Apr 19, 2013 9:37 pm 
Lincs, East and South Yorks Deputy AEC
Lincs, East and South Yorks Deputy AEC
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Joined: Fri Feb 29, 2008 11:55 pm
Posts: 5364
Location: GUNNESS NTH LINCS
slightly off topic but weve got a few learners at college with similar issues, ive looked into cycling enrichment activities so anything that helps, websites etc would be ace, although the learners here are mostly 16+

and its a bloody good excuse to ride a bike around the local fields with people who would really appreciate it and have fun


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PostPosted: Fri Apr 19, 2013 10:00 pm 
retrobike rider
retrobike rider
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Joined: Fri Aug 08, 2008 2:36 pm
Posts: 16748
Location: Yorkshire, England
voodoo-kid wrote:
@Fluffy Chicken
No rush...so true. Yours got Downs too or something else? If you don't mind me asking that is.

youngest is 5 and has Cerebral Palsey/quadraplegic though mainly lower trunk and legs. doesn't mean much by the name as each case is different. So completely different situation.
I don't know too much about Downs other than who we meet but most seem to have full body function ? hence just keep on with the balance bike...
like I said my 'normal' son didn't ride till 7.

one thing I've learned is expect nothing and things happen when/if they happen. and find people in a similar situation.

Bristol,from your location, seems to have quite a strong cycling setup... the regular jumble, cycle recycling.. might be worth popping to them see what contacts they have with groups.


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PostPosted: Fri Apr 19, 2013 10:10 pm 
Dirt Disciple
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Joined: Tue Jan 29, 2013 11:14 pm
Posts: 71
Location: Bristol
Yeah cerebral palsy is a completely ball game. Little 'un has full body function but iffy coordination and is slower to pick things up. We'll keep persevering. She's relatively bright so maybe she'll get it. Good tips all round. Thanks.


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PostPosted: Fri Apr 19, 2013 10:41 pm 
retrobike rider
retrobike rider
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Joined: Sun Jan 09, 2011 4:47 pm
Posts: 1401
Location: Cheshire
Downs shouldn't stop her riding a bike, she'll probably just take longer to get it right but if not once she's a little bigger keep your eye on ebay for antique/retro trikes aimed at kids one should pop up at a sensible price. Best of luck

How about one of these if she is failing with balance but wants to get out on the balance bike http://www.ebay.co.uk/itm/Kidzmotion-Oo ... 564b641376


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PostPosted: Sat Apr 20, 2013 10:30 am 
Special Retro Guru
Special Retro Guru
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Joined: Sun Apr 29, 2007 6:22 pm
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Location: busy forgetting how to edge flip on a 11x11 monster cube///...
i suggest one of these karts ...they can be quite cheap if you know where to look.gumtree has a few sometimes.the small childs one with bmx tyres are great...no falling off at all...

http://www.kmxkarts.co.uk/Recumbent-Tri ... -Kidz.aspx


saw one for 80 quid a short while ago...


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PostPosted: Sat Apr 20, 2013 11:39 am 
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Joined: Fri Feb 19, 2010 3:42 pm
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Have you though about going down the occupational therapist/physiotherapist route for advice. As I work in a special school they're the first port of call for anything positional and physical? The OTs at your daughter's school might be able to offer suggestions.


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PostPosted: Sat Apr 20, 2013 11:55 am 
Special Retro Guru
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Location: busy forgetting how to edge flip on a 11x11 monster cube///...
as a former road safety officer/cycling profficiency teacher may i suggest phoning up your local council and get them to arrange a visit by an rso in your area to discuss what options there are...here in norfolk the schemes are free so no strain on the wallet.they do sessions at schools as wll as primary and nursaries too.


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PostPosted: Sun Apr 21, 2013 9:44 am 
Dirt Disciple
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Joined: Tue Jan 29, 2013 11:14 pm
Posts: 71
Location: Bristol
Thanks guys. I'd not thought about contacting the physio, occupational therapist or our local road safety team. Great ideas. I'll sit on these for now as I don't want to unnecessarily overburden the system. I'll try a home for a bit longer first and seek professional help later if it looks like she's not getting it. I dug the balance bike for her yesterday for the first time this year. Her eyes lit up. It was great. She played on it for a few minutes but got tired and fed-up so we had to stop. Small steps though...
Oh and that wooden trike looks awesome.


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PostPosted: Sun Apr 21, 2013 10:07 pm 
retrobike rider
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Joined: Fri Aug 08, 2008 2:36 pm
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Location: Yorkshire, England
Doubt your OT or Physio will help much other than have the possibility knowing or having a look of who to ask and talk to.

Never worry about over burdening them, keep ringing it's the only way anything gets done.
finding the charities if any are setup in your area is the best way. Especially specific Downs targeted or try your local Downs special school (or mixed special school) for ideas.


oh and have you tried the first port of call googling teaching down's syndrome to ride


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PostPosted: Fri May 17, 2013 7:18 pm 
retrobike rider / Gold Trader
retrobike rider / Gold Trader
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Joined: Sun Sep 16, 2012 9:59 pm
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Location: Kent, UK
Can't believe I've only just found this thread!
My eldest son has Down's syndrome, and unfortunately he can't ride a bike. Or doesn't want to!
He's 14 now.

We tried many times with bikes, trikes, stabilizers etc., the only thing which worked for him was a 4-wheeled thing, a bit like a go-kart. Very heavy though. He soon lost interest.
I was convinced that a recumbent such as a KMX would be good but he showed no interest at all.

greenstiles wrote:
I think it may just be down to being extra patient and allowing a lot more time. An ex customer of ours son has downs but once he got to grips with a bike of his own and balance etc, just rode and rode and rode......with a riding partner to add safety when needed.


That's impressive and very encouraging, as I don't know any kids with Down's who can ride a conventional 2-wheeler. Plenty ride trikes etc.. though. Even with Down's, the spectrum of disability is very wide, and there can be physical issues such as poor muscle tone, trouble with fine motor skills, etc..etc...

As you will know already, the attribute any parent of a child with Down's needs most is patience!! I think parents of disabled kids should be given medals, let alone benefits!

Please keep us posted on your little girl's progess!

Cheers,
Andrew


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