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PostPosted: Sun May 27, 2012 1:01 pm 
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Strangely, I don't seek compensation for wrongs committed, I just want people to do their job properly, like they were trained to do and get paid for, not rely on insurance schemes to protect them when they get it wrong, as there is the thought that reliance on insurance to pay up might just be part of the problem.

Sometimes just a simple sincere apology or humble explanation will do, as one thing perhaps, the humility in such an act tends to focus future actions on doing the right thing.


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PostPosted: Sun May 27, 2012 3:16 pm 
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So I guess you think you have an inborn error of metaboliosm then ?

The NHS likes to have private patients in their hospitals as it generates income that is spent on NHS patients...............

Shaun


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PostPosted: Sun May 27, 2012 4:41 pm 
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Midlife wrote:
So I guess you think you have an inborn error of metaboliosm then ?

The NHS likes to have private patients in their hospitals as it generates income that is spent on NHS patients...............

Shaun


I understand one of the reasons a doctor might test for this is because of infertility, and I am infertile, completely so, I just do not produce the little buggers necessary and have other physical characteristics synonymous with the reported criteria for chromosomal variations, namely Klinefelter's and associated, so a question exists that might answer 22 years of depression and with that a way out of depression, because the problem that destroyed my life has a reason. Anyone ever wondered why I am so negative ?

And just to think, it took until only three years ago to be diagnosed with Asperger's syndrome too, so I am not stupid as I had always thought, in fact very intelligent, but on a day to day basis, I just don't get it and never have.

Oddly, it was reading some research by Baron-Cohen that put me onto this possibility.


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PostPosted: Sun May 27, 2012 10:30 pm 
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If you think you have KS then this is pretty simple to pick up along with Downs, Patau, Turners, Cri-du Chat.........

Aspergers is a bit more tricky and not my area of expertise but there are a lot of people out there in the NHS who deal with ASD.

Best of luck..

Shaun


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PostPosted: Mon May 28, 2012 11:40 am 
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ASD as far as the NHS is concerned so far from experience it ranges from incurable (which is correct) and therefore prescribe anti depressants and so forth for the symptoms of it crashing with an NT world and the other is adults with Asperger's being treated based on the observation of Asperger children. The two are not the same, as those late diagnosed often towards midlife have obviously without knowledge of their condition created their own coping mechanisms with varying levels of success and tend to react when they detect condescending attitudes and we know what research there is out there is very sketchy when it comes to the late diagnosed so professionals in this field tend to defer to sub eighteen year old characteristics which is wrong.

I would have carried on with this completely unknown as I sort of rubbed along and was good at what I could do if it was not for a breakdown where everything turned to crap, lost my job, lost my home and lost my marriage, lost all my stuff and went sort of vagrant, sofa surfing. Eventually it was suggested I do art therapy to try and work out what I could not explain or put my finger on and it was in the art therapy the college sent me for testing for Dyslexia and I came back with a diagnosis of Aspergers and Dyspraxia, later confirmed by NHS on two separate occasions.

So towards middle age now and I am starting to understand and with that what I am beginning to know now would have helped in the past as I can quite honestly say the last twenty odd years has been a complete disaster and I have attempted suicide on a few occasions, but I had enough of being like this, this unknowing, I need answers, so where my doc appears not interested or condescending I will research for myself and ask the relevant questions and seek the testing necessary, because I want my next twenty years to be a whole lot better than the last. I seek knowledge of myself and will accept anything, if it answers the questions I have and as regards the xxy scenario, the mind stuff, I have chatted with some confirmed and diagnosed and they confirm similarities of thought. So all I require of the NHS is the testing and then the rest is up to me.


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PostPosted: Tue May 29, 2012 4:17 pm 
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Oh crap, here we go again.

The hospital has done it again, supplied the wrong information again, but at least now the phlebotomist, and my GP are asking questions too. But hey four blood samples now and no further forward how much NHS funding has been wasted in just this one case. Good job the blood sample was not for the purposes of something life threatening or contagious and if ever something contagious did occur, then it is my firm belief given my experience with the so called specialists at that place, that we would all be well and truly stuffed as it appears they are failing on one very basic component; knowledge and operating procedures of the company that employs them.

Or is it a form of professional medical arrogance ?


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PostPosted: Tue May 29, 2012 8:21 pm 
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Not sure what can go wrong : )

IIRC from my training days (albeit a good number of years ago) chromosome tests tests are carried out on white cells from peripheral venous blood collected in a heparinised Vacutainer.... Is that how you understand it?

It never rains but it pours as they say.

Shaun


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PostPosted: Tue May 29, 2012 9:36 pm 
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Is the lab part of the NHS, or private contractor?


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PostPosted: Wed May 30, 2012 12:08 am 
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Midlife wrote:
Not sure what can go wrong : )

IIRC from my training days (albeit a good number of years ago) chromosome tests tests are carried out on white cells from peripheral venous blood collected in a heparinised Vacutainer.... Is that how you understand it?

It never rains but it pours as they say.

Shaun


Yep container containing lithium heparin so they say a green topped container, yet I understand a green topped container can contain lithium heparin or sodium heparin, whereas a green and grey top contains lithium heparin only....

I was told by the lab to give the message if the documentation was unclear that a full sample was to be collected in a lithium heparin green topped vacutainer. I just hope the vacutainer has lithium heparin in it and not sodium heparin as to what difference that would make, I don't know, but when a specialist says one thing, it is usual they don't mean something else.

What appears to be happening is some bod up in the labs is asking for something which is unclear to the phlebotomists, so they try to contact the lab for guidance and receive nothing conclusive, so as a last resort they ask me what it's for, so I tell them, they check their guidelines, show me what the guidelines say and go for it based on the guidelines and it gets rejected by the bod in the lab every time, the bod whose name the lab won't reveal to me when I ask, but I will get it as I do feel abused in this situation and although I don't usually complain, on this occasion I do believe there is something that needs to be addressed and that, because this is medicine where someone now knowing what they are supposed to be doing can result in people losing their lives.

The lab is an NHS lab which I understand does both NHS, private and commercial work or so their very impressive website says.


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PostPosted: Wed May 30, 2012 12:08 am 
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Fecking Mac again, of is it the two pints of Abbott ale I have just had.


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