Jake has autism and Duchenne Muscular Dystrophy. DMD is a muscle wasting disease which progresses rapidly once they reach 7 yo. Basically the muscle stop repairing themselves so they become weaker and weaker over time. The first muscle to be noticably effected are the large ones in the legs. This time last year Jake was running around like any other boy of his age. Yes, it's sad, he doesn't have much of a life to look forward to but we need to keep positive for him.
We are trying to squeeze in as many experiences for him as we can while he still has some mobility. We are going to Disney Florida in October this year with no expense spared.
We are in two minds what to do, prolong the inevitable with the treatments available or let nature take it's course. Both will have the same result in the end but he may live a few years more but his quality of life by that time will not be good.
Thanks for your kind words guys, really appreciate it