Retrobike Forum Index

It is currently Sat Dec 10, 2016 3:49 pm

* Login   * Register * Search  * FAQ



Post new topic Reply to topic  [ 20 posts ]  Go to page 1, 2  Next
Author Message
PostPosted: Wed Apr 14, 2010 7:50 pm 
Anglian Deputy AEC
Anglian Deputy AEC
User avatar

Joined: Mon Oct 09, 2006 6:13 pm
Posts: 6928
Location: Livin' in a dust bowl
Due to my sons ill health I am having to resign as Anglian AEC with immediate effect. Jake is not doing well, he needs a wheelchair to get around nowdays which is hard for him and his mum. Most weekends are taken up with respite care or therapy for him so every moment together is precious.

I am not going anywhere, will still be around, but commiting to attend events will be difficult.

Chris


Last edited by REKIBorter on Thu Apr 15, 2010 9:03 am, edited 1 time in total.

Top
 Profile  
 
 Post subject:
PostPosted: Wed Apr 14, 2010 7:54 pm 
Section Moderator & South West AEC
Section Moderator & South West AEC
User avatar

Joined: Mon Jun 25, 2007 3:33 pm
Posts: 8169
Location: new forest
very sorry to hear that :(


Top
 Profile  
 
 Post subject:
PostPosted: Wed Apr 14, 2010 8:08 pm 
Lincs AEC
Lincs AEC

Joined: Fri Sep 07, 2007 8:34 pm
Posts: 12314
Location: Branston, Lincoln
jonnyboy666 wrote:
very sorry to hear that :(


Indeed.

But family, especially kids, need to come first.

Thanks for your dedication bud, and all the best to you, your family and your little man.


Top
 Profile  
 
PostPosted: Wed Apr 14, 2010 8:32 pm 
King of the Skip Monkeys
King of the Skip Monkeys
User avatar

Joined: Wed Nov 07, 2007 4:34 pm
Posts: 26184
Location: Moomin Valley
REKIBorter wrote:
Due to my sons ill health I am having to resign as Anglian AEC with immediate effect. Jake is not doing well, he needs a wheelchair to get around nowdays which is hard for him and his mum. Most weekends are taken up with respite care or therapy for him so every moment together is precious.

I am not going anywhere, will still be around, but commiting to attend events will be difficult.

Chris


Theres not much you can say to that... just not a nice thing to go through. I can only offer my help if you ever need it.


Top
 Profile  
 
 Post subject:
PostPosted: Wed Apr 14, 2010 8:35 pm 
retrobike rider
retrobike rider
User avatar

Joined: Fri Aug 08, 2008 2:36 pm
Posts: 16750
Location: Yorkshire, England
'tis wise to be at home and not having to sort us lot out.

Don't know what condition he has, but I have an almost 2 year old with Cerebral Palsy (PVL) so cannot walk or sit properly and I know and certainly my wife does the time and attention it takes.

But yours sound worse :(


Top
 Profile  
 
 Post subject:
PostPosted: Wed Apr 14, 2010 8:46 pm 
Anglian Deputy AEC
Anglian Deputy AEC
User avatar

Joined: Mon Oct 09, 2006 6:13 pm
Posts: 6928
Location: Livin' in a dust bowl
Jake has autism and Duchenne Muscular Dystrophy. DMD is a muscle wasting disease which progresses rapidly once they reach 7 yo. Basically the muscle stop repairing themselves so they become weaker and weaker over time. The first muscle to be noticably effected are the large ones in the legs. This time last year Jake was running around like any other boy of his age. Yes, it's sad, he doesn't have much of a life to look forward to but we need to keep positive for him.

We are trying to squeeze in as many experiences for him as we can while he still has some mobility. We are going to Disney Florida in October this year with no expense spared.

We are in two minds what to do, prolong the inevitable with the treatments available or let nature take it's course. Both will have the same result in the end but he may live a few years more but his quality of life by that time will not be good.

Thanks for your kind words guys, really appreciate it 8)


Top
 Profile  
 
 Post subject:
PostPosted: Wed Apr 14, 2010 9:04 pm 
retrobike rider
retrobike rider
User avatar

Joined: Fri Aug 08, 2008 2:36 pm
Posts: 16750
Location: Yorkshire, England
My brothers running in the London BUPA 10K in May in support of DMD Trust and just about to pass £250 pledge on JustGiving by the looks of it. His colleague son was recently diagnosed with it :(.


Top
 Profile  
 
 Post subject:
PostPosted: Wed Apr 14, 2010 9:13 pm 
Lincs AEC
Lincs AEC

Joined: Fri Sep 07, 2007 8:34 pm
Posts: 12314
Location: Branston, Lincoln
Brought a lump to my throat reading that Chris :(

If the treatment doesnt hurt the little man, keep it up and get as much time as you can.


Top
 Profile  
 
 Post subject: what can you say
PostPosted: Wed Apr 14, 2010 10:17 pm 
Dirt Disciple

Joined: Mon Dec 07, 2009 9:17 pm
Posts: 99
Location: Cambridge
If you need anything, anytime, your 30minutes from me mate. Even if it's someonew to talk to or a gofor I'm your man.


Top
 Profile  
 
 Post subject:
PostPosted: Wed Apr 14, 2010 10:23 pm 
retrobike rider
retrobike rider
User avatar

Joined: Sat Jun 14, 2008 8:11 pm
Posts: 332
Location: the sticks, norfolk, uk
not much i can say to that chris........ good thoughts to you & yours though mate


Top
 Profile  
 
Display posts from previous:  Sort by  
Post new topic Reply to topic  [ 20 posts ]  Go to page 1, 2  Next

All times are UTC [ DST ]


Who is online

Users browsing this forum: No registered users and 1 guest


You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum
You cannot post attachments in this forum

Search for:
Jump to:  

About Us

Follow Retrobike

Other cool stuff

All content © 2005-2015 Retrobike unless otherwise stated.
Cookies Policy.
bikedeals - the best bike deals in one place
FatCOGS - Fat Chance Owner's Group

Powered by phpBB® Forum Software © phpBB Group